Autism Society’s Suzelis: Give Grace, No One is Perfect

Robin Suzelis, Board President of the Autism Society of Mahoning Valley, is coming back strong. To learn more about the Autism Society of Mahoning Valley, check out its website.

What are some ways your organization is rebounding from the effects of COVID-19?

The Autism Society of Mahoning Valley is an organization that relies exclusively on volunteers, from parents to local business professionals. 

During the shutdown, we had to cancel in-person programs, but we continued to offer resources for parents and local disability organizations through phone, email and messenger. We helped parents and agencies find therapy providers, county services and needed assessments. We were also available just to listen and give support. Our annual Camp FRIEND was turned into a successful Virtual Camp FRIEND program for all ages and abilities. We also had our first in-person event this past weekend, an outdoor private swim party.

What’s been the reaction from members so far?

Our families have been very affected by community and school closings. Children and adults with autism or other disabilities need their routines. Also, many have needed more services and/or therapy than they received even before COVID-19. Families are grateful for any support or resources we can provide.

What impact has the outbreak had on you personally?

Personally, I have two beautiful boys with autism, who are eight years old and 13 years old. Losing their school and therapy services was very difficult for them. My youngest, who also has an intellectual disability, especially didn’t understand why he wasn’t going to school and couldn’t go to stores, restaurants, gymnastics and everywhere else he went every week. I would tell him that too many people are sick, and that we had to stay home so we didn’t get sick.

What advice are you sharing with the people you love?

For my boys, just lots of hugs, and telling them that I love them and they are doing a great job. I try to be very patient and to be as positive as I can be. For my friends who have children with autism, I tell them to do their best, but that no one is perfect. Give yourself some grace and try to get a few minutes to relax every day, even if it’s just an hour of TV or reading after the kids are in bed.